The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Ann Arbor, MI

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 119 doctor with experience in Neurofibromatosis Type 1 (NF1) near Ann Arbor, MI. Of these, 42 are Experienced, 7 are Advanced and 1 are Distinguished.

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119 providers found
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Pediatrics
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Dr. Patricia Robertson, M.D., earned a medical degree at Wayne State University Medical School in Detroit and completed a residency in pediatrics at Children's Hospital of Michigan. She then went on to a fellowship in pediatric neurology at the University of Michigan and trained in pediatric neuro-oncology at New York University Medical Center. Dr. Robertson joined the University of Michigan faculty in 1988. She has a special interest in clinical pediatric neuro-oncology focusing on the evaluation of response, outcome and late effects on the developing nervous system; current treatment strategies for children with central nervous malignancies; and in the development of innovative treatment approaches for this population. Dr. Robertson is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses Glioma, Diencephalic Syndrome, Brain Stem Cancer, and Brain Tumor.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Cardiology | Pediatrics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Dr. Pasquali is the Janette Ferrantino Professor of Pediatrics and the Interim Associate Chief Clinical Officer for C.S. Mott Children’s Hospital at the University of Michigan. She has previously served as the Service Chief for the Division of Pediatric Cardiology and the Director of Research and Quality within the Congenital Heart Center. Dr. Pasquali received her undergraduate degree from University of Michigan and medical degree from Duke University School of Medicine. She completed pediatric residency and pediatric cardiology fellowship training at the Children’s Hospital of Philadelphia. She has a Masters of Health Sciences degree in Clinical Research, and has completed executive leadership training through the ELAM program.Dr. Pasquali’s work has focused on optimizing pediatric care and outcomes both locally and across the country through research, quality, and policy efforts. She has authored more than 200 publications in this area and her research has been continuously funded by the NIH throughout her career. She is the Co-PI for her center’s participation as one of 9 core sites in NHLBI-funded Pediatric Heart Network, and was a co-founder of Cardiac Networks United which has fostered collaboration spanning more than two thirds of the nation’s congenital heart programs to support novel research and quality efforts that have improved care and outcomes across children’s hospitals. She recently led an initiative that brought together 15 professional societies and 20+ institutions to develop the first multi-disciplinary consensus guidelines for congenital heart surgery in the US. Dr. Pasquali is the immediate past chair of the American Heart Association Scientific Sessions for the Young Hearts Council, and is an active mentor, recently launching a national early career exchange program across congenital heart centers.Dr. Pasquali has received numerous awards including the Outstanding Research Award in Pediatric Cardiology from the American Heart Association, and Richard E. Clark Award from the Society of Thoracic Surgeons. Dr. Pasquali is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Coarctation of the Aorta, Tetralogy of Fallot, Heart Transplant, and Aortic Valve Replacement. Dr. Pasquali is board certified in Pediatric Cardiology.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Cardiology | Pediatrics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Dr. Dorfman was born and raised in southeast Michigan, and returned home in 2007 after training and working as faculty at Children’s Hospital Boston and Harvard Medical School. He is co-director of congenital and pediatric cardiovascular magnetic resonance imaging and attends in the echocardiography laboratory, as well as seeing patients in a general pediatric cardiology clinic. Dr. Dorfman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Tetralogy of Fallot, Double Discordia, Transposition of the Great Arteries, and Hypoplastic Left Heart Syndrome (HLHS). Dr. Dorfman is board certified in Pediatric Cardiology.

    Learn about our expert tiers
    Pediatric Cardiology | Pediatrics
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Sowmya Balasubramanian is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Balasubramanian is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Tetralogy of Fallot, Double Discordia, Patent Foramen Ovale Repair, and Aneurysm Repair. Dr. Balasubramanian is board certified in Pediatric Cardiology.

    Pediatric Cardiology | Pediatrics
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    I grew up in a working class family in a small town in Illinois. Caring for children was the primary goal that steered me into a medical career. My pediatric and cardiology training were at St Louis Children's Hospital / Washington University. I trained for two years in pediatric electrophysiology under Professor J. Philip Saul at the Medical University of South Carolina. My wife and I love living in Ann Arbor and have two school age boys. I have been the Cubmaster of a local pack for over 5 years and enjoy volunteering my time to help children outside of the hospital. My free time is spent as the family cook and in activities with my children. Dr. Lapage is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Block, Arrhythmias, Congenital Heart Disease (CHD), Cardiac Ablation, and Heart Transplant. Dr. Lapage is board certified in Pediatric Cardiology and Pediatrics.

    Pediatric Cardiology | Pediatrics
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Carlen Fifer is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Fifer is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Tetralogy of Fallot, Lithotripsy, and Septoplasty. Dr. Fifer is board certified in Pediatric Cardiology.

    Pediatric Cardiology | Pediatrics
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Thor Thorsson is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Thorsson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 107 other conditions, according to our data. His clinical expertise encompasses Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Isthmian Coarctation. Dr. Thorsson is board certified in Pediatric Cardiology.

    Pediatric Cardiology | Pediatrics
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English

    Sarah Gelehrter is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Gelehrter is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Tetralogy of Fallot, Mitral Atresia, Lithotripsy, and Gastrostomy. Dr. Gelehrter is board certified in Pediatric Cardiology.

    Pediatric Cardiology | Pediatrics
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Experience:
    44+ years
    Languages Spoken:
    English

    Gregory Ensing is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. He has been practicing medicine for over 44 years. Dr. Ensing is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Double Outlet Left Ventricle, Tetralogy of Fallot, Partial Atrioventricular Canal, and Atrioventricular Septal Defect.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology | Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neuroradiology | Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Eric Liao is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Liao is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pediatric Low-Grade Glioma (pLGG), Arachnoid Cysts, and Neurofibromatosis Type 2 (NF2). Dr. Liao is board certified in Neuroradiology and Diagnostic Radiology.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology | Neuroradiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology | Neuroradiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Diana Gomez is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Gomez is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Sciatica, Relapsing Multiple Sclerosis (RMS), Cerebellar Degeneration, and Meningioma. Dr. Gomez is board certified in Diagnostic Radiology and Neuroradiology.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Sung Kim is a Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Rhabdomyosarcoma Embryonal, Undifferentiated Pleomorphic Sarcoma, Synovial Sarcoma, and Caffey Disease. Dr. Kim is board certified in Diagnostic Radiology.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Yoav Morag is a Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Morag is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Synovial Sarcoma, Rhabdoid Tumor Predisposition Syndrome, Rhabdoid Tumor, Ganglioneuroblastoma, and Nerve Decompression. Dr. Morag is board certified in Diagnostic Radiology.

    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Gary Luker is a Radiologist and a Pediatric Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Luker is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Myeloproliferative Neoplasms (MPN), Tracheoesophageal Fistula, Posterior Urethral Valves, Chondrodystrophy, and Hepato-Pancreato-Biliary Surgery. Dr. Luker is board certified in Diagnostic Radiology and Pediatric Radiology.

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Roberto Choudens is a Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Choudens is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Cerebellar Degeneration, Brain Aneurysm, and Meningioma. Dr. Choudens is board certified in Diagnostic Radiology and Neuroradiology.

    Radiology | Neuroradiology
    Radiology | Neuroradiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Aseem Sharma is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Sharma is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Sciatica, Invertebral Disc Disease, Subarachnoid Hemorrhage, and Posterior Fossa Decompression. Dr. Sharma is board certified in Neuroradiology and Diagnostic Radiology.

    Neuroradiology | Radiology
    Neuroradiology | Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Mohannad Ibrahim is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Ibrahim is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Stroke, Cerebellar Degeneration, Relapsing Multiple Sclerosis (RMS), and WT1-Related Wilms Tumor Syndromes. Dr. Ibrahim is board certified in Diagnostic Radiology and Neuroradiology.

    Radiology | Neuroradiology
    Radiology | Neuroradiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Francisco Rodriguez is a Radiologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Rodriguez is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Meningioma, Primary Lymphoma of the Brain, Mantle Cell Lymphoma (MCL), and Pediatric Low-Grade Glioma (pLGG). Dr. Rodriguez is board certified in Diagnostic Radiology and Neuroradiology.

    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Peter Strouse is a Radiologist and a Pediatric Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Strouse is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Shaken Baby Syndrome, Intussusception in Children, Lung Nodules, and Appendicitis. Dr. Strouse is board certified in Diagnostic Radiology and Pediatric Radiology.

    Radiology | Pediatric Radiology
    Radiology | Pediatric Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English

    Anastasia Hryhorczuk is a Radiologist and a Pediatric Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Hryhorczuk is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Posterior Urethral Valves, Pleural Effusion, Pleurisy, and Hepatoblastoma. Dr. Hryhorczuk is board certified in Diagnostic Radiology and Pediatric Radiology.

    Showing 1-20 of 119

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor near Ann Arbor, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Ann Arbor, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Ann Arbor, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Ann Arbor, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Ann Arbor, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Ann Arbor, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Ann Arbor, MI?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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